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Complex, Complicated and Rare Diseases

Complex & Complicated conditions; 

  • Conditions that are life threatening: cancer, heart disease, stroke, and HIV/AIDS.

  • Conditions that cause serious disability without necessarily being life threatening: stroke, closed head or spinal cord injuries, mental retardation, and congenital malformations.

  • Conditions that cause significant pain or discomfort that can cause serious interruptions to life activities: allergies, migraine, arthritis, and sickle cell disease.

  • Conditions that require major commitments of time and effort from care-givers for a substantial period of time: mobility disorders, blindness, Alzheimer's disease and other dementias, chronic obstructive pulmonary disease, paraplegia or quadriplegia, Down's syndrome, and depression.

  • Conditions that may require frequent monitoring: diabetes, conditions requiring anti-coagulation treatment, severe asthma, severe allergies, and schizophrenia and other psychotic illnesses.

  • Conditions that predict or are associated with severe consequences: hypertension (associated with heart disease), depression (associated with suicide), diabetes (associated with blindness, kidney failure), and alcohol and other substance abuse (associated with intentional and unintentional injuries).

  • Conditions associated with negative consequences for someone else: high-risk pregnancy (risk to new-born), HIV/AIDS (risk to sex partner), and tuberculosis (risk to community in general).

  • Conditions that affect multiple organ systems: HIV/AIDS, cancer, and diabetes.

  • Conditions that require management to "tight" physiological parameters: conditions requiring anti-coagulation therapy, type I diabetes (possibly type II also), and kidney failure.

  • Conditions whose management requires coordination of multiple specialties: breast cancer, depression co-morbid with serious medical conditions, multiple sclerosis, and cerebral palsy.

  • Conditions whose treatment carries a risk of serious complications: most cancers, and other conditions requiring complex surgery.

  • Conditions requiring adjustment in a "non-medical environment": mobility disorders, blindness and other sensory disorders, Alzheimer's disease, and frailty.

Rare diseases

Rare diseases are diseases which affect a small number of people compared to the general population. The identified rare diseases are approximately 7,000  affecting more than 300 million people worldwide. Most rare diseases are genetic, and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life. Relatively common symptoms can hide underlying rare diseases leading to misdiagnosis and delaying treatment. In addition symptoms differ not only from disease to disease, but also from patient to patient suffering from the same disease.The fact that there are often no existing effective cures adds to the high level of pain and suffering endured by patients and their families.

 

At Knowurture we make a conscious effort to provide an early diagnosis and management options where treatment is yet not available.

Quick reference to determine the level of Uncertainty associated with your illness

Get an accurate Diagnosis & an Appropriate Treatment Plan

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